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Collaborating globally to transform perceptions of Parkinson Disease through creative advocacy.

Reviews - What Others Have Said

I've never seen a more amazing disease-specific book in my life.


For a book about a terrible disease, it's colorful, illustrated and easy to digest.

The chapters include: Parkinson basics and beyond; PD is more than a movement disorder; helping ourselves; quality of life; the difficult bits; PD activism; advocacy in action; going international; and where we are now. It includes a helpful glossary of all the technical and medical jargon thrown around with this disease.

If you or a loved one is suffering from Parkinsons, I believe there is no better book to consider than The Peripatetic Pursuit of Parkinson Disease.

Dr. John Grohol, founder & CEO of Psych Central, author, researcher and expert in mental health online. He sits on the editorial board of the journal Cyberpsychology, Behavior and Social Networking and is a founding board member and treasurer of the Society for Participatory Medicine.

Read the full review here.

This is a masterplece, pure and simple. Thls is a book that will change your perspective on PD forever.


This is a book which prompts original thought, challenges existing dogma, provokes responses, and empowers the reader. It is further even than that -- it's an aerobic workout for the brain!

The book is also accessible. Individual sections are short and punchy. Personal testimonies abound, providing intimacy and a human scale to the neurobiology. Everything is here -- from reactions to diagnosis through to the ethics of sham surgery in clinical trials. And all points in between.

You may not know it yet but this book is what you have been waiting for!

Jon Stamford, PhD, PwP, co- founder of Parkinson's Movement, UK Autumn 2013 edition of "On the Move," Parkinson's Movement's newsletter

What an amazing book! I had to force myself to put it down after I skimmed through it, because I just wanted to keep reading.

Amanda Start, Collection Development Librarian, Health Sciences Library, University at Buffalo

This book touches on many issues we experience day to day and keeps a positive feeling about living with a chronic neurodegenerative disease. I thought I knew a lot about PD but after reading this book I have learned so much more.

Lori Katz, PwP, Support Group Leader

I am in complete awe as I read through the excellent book that you have all produced. It is such an amazing work of art on the subject of PD...Thank you, Thank you, Thank you!!!

Myra Hirschhorn, PD care partner, Support Group Leader